So it's been a week since the dry run and not too much has happened. We are still patiently waiting but instead of tucking the idea of being called neatly away in the back of our minds with the assumption that it will be months until we hear from them, it is now sitting ever so dominantly at the forefront of our everyday lives. In the words of my brother-in-law Dave, "Shit just got real!". Now I know it's probably going to be soon and I'm pretty damn scared to say the least. I know I'm in competent hands, some of the best in the world actually, but the whole process just seems so exhausting and hard! Yes I realize I sound a little like a lazy wiener but come on folks, this isn't a run of the mill surgery where they stitch you up and send you on your way to heal for a couple weeks. No, no, this is a 'Say goodbye to your old self because a new one is on its way' kind of surgery. I say 'self' because it will not only be lungs that are changed out in all of this. This will no doubt be a life changer, for the good and for the bad. Now don't get me wrong here I'm not only referring to negative changes, I hope there will be WAY more good than bad, but as many you might know I am a worrier and I tend to zero in on the things that I dread happening. Some of these things are very real and valid reasons to worry such as: waking up with the breathing tube, the pain, death, rejection, cancer, etc. (I hate using etc at the end of this because it makes the list and what is on it seem trivial but frankly I just can't name them all at this ungodly hour but you get the point) Other things I worry about are, yes I'll admit it, just plain vain. [And then you hear the audience gasp in shock as the truth is revealed behind their beloved and seemingly strong CF patient/soon to be transplant recipient. Could it be she's actually.....ughhh...HUMAN!!} I worry about the effects of all the meds, particularly prednisone. I've never been on it and I worry about gaining tons of weight, getting bad acne or having hair grow where it's never grown before. I hate when people roll their eyes at this. Now I'm not saying these worries have the same weight as the ones I mentioned earlier and I know they are things I CAN deal with, I just don't WANT to have to. Plain and simple. There is so much shit I have to deal with and I will have to deal with that I just don't want those things added on the list of shitty things. I know I'm going to get some comments about how I need to just appreciate the new lease on life. I get that. I do appreciate, trust me, I'm just getting it off my chest. I can't be the only one. Enough about that though. I wanted to just let everyone know how I've been feeling lately because the number one single question I get asked is "How are you feeling?" by genuinely inquisitive friends and family and I love you for it. I just got off IV meds a week ago and I haven't felt too bad. Fingers crossed that it lasts. I've even been able to do extra weights and faster pace at physio. That could be because Jeff, a.k.a 'The Tyrant', makes me though. Hahaha. Anyways, I'll continue to keep you all posted.
Carla :)
You may not think you are a hero, but to many of us you sure are!
ReplyDeleteI think that you have valid concerns about it all, I don't think it is vein about the weight gain, the puffy face, the possible acne, etc. Luc had the same feelings. He started prednisone 8 weeks ago and it's a life changing drug, but the good out way the bad! I mean who wants to deal with all that extra crap...just give the lungs and give that other shit to someone else lol. Keep strong and positive! Your a great writer and I enjoy reading your blog, your feelings are so real...things that no one else admits too! Your call is coming...just a matter of time.
ReplyDeleteThanks Carla for sharing the 'real'. It is not something that those of us who don't have to face what you are facing think about - we just go right from the transplant to the 'one-arm push-ups". You have to think of the crappy stuff leading up to that - we also need to appreciate that we need to be there for you in the etc....We all know that you get the good stuff but the honesty of your writing helps us to understand the deal and also helps us recommit to being there during the crappy stuff leading up to the 'one-arm push-ups'. Thanks for keeping things 'real'. Loveya sweet girl - keep on writing!!
ReplyDeleteP.S. Leslie is right, we will be the judge of hero-ness :)
ReplyDeleteI get it. Theres nothing to be ashamed of with regard to the 'minor' worries. I see it as, if i can be strong and get through all the hard stuff, like pain and little bumps that happen, then i still want to be ME on the other end.. i dont want to be some totally-different-looking or acting girl.. I want my husband to see me as I should always have been.. same with my family adn friends! I look up to you for being as strong as you have been so far :)
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